Decline 08/28/2019

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Since the emergency room visit.........seen Neurologist in Knoxville recommended not to get ocrevus infusion to get back problem fixed first.  Had an MRI was able to go by myself and walk at that time.  But, since then and even before was having problems walking.   Now, I'm mostly bed bound.    

I'm glad was able to go on vacation with mom in May.  I was having problems then to.  But, was able to manage it.  After that everything got worse.   It was hard to even walk three feet to the bathroom without being in pain.  Then getting up off toilet was even worse.  I had to lay in the floor in the bathroom to get back and legs to stop hurting before I could make it back to the bed.  Now, I can no longer walk to the bathroom.  

I have purchased a lot of medical equipment to help but, I can't use it.  I already had arm crutches but had bought a walker/rollator  before going on vacation. Didn't have to use it much and was mainly thinking it would help mom.  But, she would have no part of it.  She's 80 years old and has some balance issues.  Then, I thought I'm going to have to use it because the way I was getting.   Then came the toilet riser seat once again thinking about mom because she said she needed one.  Again, after buying it she didn't want any part of it. She told me to use it since I was having problems.  I did it helped a little but I really didn't need it at that time.   My back and legs got worse.  I couldn't even stand in the shower without my legs feeling like they where being elecuted.  I would cry and try my best to at least take a shower.  Then came the shower chair.  That helped a few times to be able to sit down.    It hurt really bad and every time I was trying to get to the bathroom or to shower I ended up crying and sometimes I would just scream out loud.  Not kidding felt like I was being electrocuted.    Now, I 'm worse than that.   I can't sit up or put pressure on my back or my right side.  Putting my feet on the floor to try to walk is again like being electrocuted.    So, now I'm basically not able to do much at all.     Been mostly in my bed since May (three months).   Purchased a bed side commode not able to sit on it because of pain and can't even slide over to it.  I got a full house of equipment I can't use.   

Had an appointment with my doctor to get a referral to a Neuro surgeon to see about back surgery on the 19th.  I couldn't get there.  I can't walk and even if I made it to the car I wouldn't be able to sit up.  Then, how was I going to get into the doctor office without screaming my head off because I would have to sit up in a wheelchair.  Called doctors office to explain situation and cancel appointment.  Got a referral to a Neuro surgeon.  But, how am I going to go!  Asked for in home nursing care and was told they can't do that without seeing the doctor in the past month or the insurance won't cover it!    If I go to the emergency room they just give shots for pain then say make an appointment with your regular doctor.   I can 't get to my regular doctor!

I can't afford 250.00 ambulance fee to and another 250.00 back that's my insurance co-pay.

So, I'm sitting here unable to shower, unable to go bathroom using pads, unable to brush my teeth, unable to get medical help.  So, I guess I'm going to set here and die.  

Not to forget to mention the local morons who harass me with what ever the hell that sound stuff is that they got that vibrates my back.  I think is causing more damage to my back and pain.  When that stops I feel a little better and can stand up.

Emergency Room X-Ray




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